Лиззи Веласкес — блогер и писательница с очень редкой болезнью

Блогер, писательница и «оратор-мотиватор» американка Лиззи Веласкес — носитель редкой болезни, синдрома Видемана — Раутенштрауха. При росте 152 сантиметра вес тела Лиззи никогда не превышал 29 килограммов. Кроме того, она слепа на один глаз.

В 2013 году Лиззи была названа «самой уродливой женщиной в мире». В детстве над ней издевались ровесники, а сегодня она мотивирует других и участвует в исследованиях Юго-западного медицинского центра Техасского университета.

(Всего 25 фото + 2 видео)

The first thing @WWETheBigShow told me was «Big things come in tiny pack­ages!» I had so much fun shar­ing the stage with him today and talk­ing about anti-bullying.

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 20 2015 в 12:22 PDT

THANK YOU!! 500K!! 

Видео опубликовано Lizzie Velasquez (@littlelizziev) Окт 7 2015 в 2:13 PDT

Can’t stop Won’t stop! Suc­cess­ful­ly reached down for every­thing I had left and did one more real­ly awe­some shoot before a two week break!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 4 2015 в 5:37 PDT

Dur­ing my meet & greet this sweet girl came up to me and said she wants to start her own YouTube chan­nel and want­ed to one day record a video with me. I asked her mom if we could use her phone and we record­ed her first video togeth­er! Moments like these are what makes my job so rewarding. 

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 3 2015 в 12:19 PDT

I think it’s only appro­pri­ate to post this here! Felt like the best field trip ever!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 2 2015 в 1:45 PDT

Our first stop of the day was at the #Face­book head­quar­ters. I did­n’t want to leave!! Thanks every­one who par­tic­i­pat­ed in my Q&A ear­li­er today. Can’t wait to do it again some­time!! @abraveheartfilm

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 2 2015 в 1:35 PDT

The smile on my face isn’t going away any­time soon. I can­not express the excite­ment I have for what’s in store very soon!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Авг 20 2015 в 1:40 PDT

Hey Y’all! Ollie and I are lov­ing our new SoundLink Mini speak­er II from @Bose! I am so excit­ed to be part­ner­ing with them – they are going to send one of you a speak­er! Trust me, it’s the best! BTW @BOSE is pick­ing a ran­dom fan to receive a speak­er this sum­mer – do an IG post and use #SoundLinkSceneSweeps 😀 NO PURCH NECESSARY. Starts 7/30/15, 11.59 PM PT & ends 8/30/15, 11:59pm PT. Open to US & DC exclud­ing RI includ­ing Cana­da except Que­bec; 18+. Lim­it 1 entry/person. Entry/Rules:http://bit.ly/1RzyJ4B Void where prohibited

Фото опубликовано Lizzie Velasquez (@littlelizziev) Авг 17 2015 в 11:56 PDT

Hey Friends!! I’m SO EXCITED to share with you that I’m work­ing with @Bose to share their new SoundLink Mini speak­er II this sum­mer! @BOSE is gonna pick one ran­dom fan to receive a speak­er too, they’re pick­ing a per­son who uses #SoundLinkSceneSweeps in a IG post, easy enough right? NO PURCH NECESSARY. Starts 7/30/15, 11.59 PM PT & ends 8/30/15, 11:59pm PT. Open to US & DC exclud­ing RI includ­ing Cana­da except Que­bec; 18+. Lim­it 1 entry/person. Entry/Rules:http://bit.ly/1RzyJ4B Void where prohibited.»

Фото опубликовано Lizzie Velasquez (@littlelizziev) Авг 10 2015 в 4:39 PDT

Tomor­row morn­ing my sweet mom will be going back to the hos­pi­tal for anoth­er surgery. Please send any and all prayers and pos­i­tive thoughts our way. We have faith that she is in God’s hands and will be well tak­en care of!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Авг 9 2015 в 8:57 PDT

Two flights from Austin to Michi­gan, quick film mak­ers par­ty as soon as we land­ed, screen­ing of @thewolfpackfilm, and then stop­ping by the @TCFF Anniver­sary par­ty. It was a suc­cess­ful day!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Июл 31 2015 в 10:02 PDT

See you soon London!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Июл 6 2015 в 3:58 PDT

Enjoy­ing some rooftop views in the city 🙂

Фото опубликовано Lizzie Velasquez (@littlelizziev) Июн 22 2015 в 4:16 PDT

IN A THEATER NEAR YOU, VERY SOON!! Thank you so much to every­one who helped make this pos­si­ble! This is OUR movie and we are so hon­ored and excit­ed to be on this jour­ney togeth­er! Help us share this great news – and we’ll give you more details as soon as we can!! #Cinedigm @abraveheartfilm

Фото опубликовано Lizzie Velasquez (@littlelizziev) Апр 16 2015 в 8:30 PDT

One of the many rea­sons why I love my fam­i­ly!! @abraveheartfilm

Фото опубликовано Lizzie Velasquez (@littlelizziev) Мар 19 2015 в 10:04 PDT

Thx to @spratx & @Impermanent_Art for this @littlelizziev #ABrave­Heart­Film mur­al! Come see it @ 2615 E 6^th! #SXSW

Видео опубликовано Lizzie Velasquez (@littlelizziev) Мар 16 2015 в 9:46 PDT

Yep. This is hap­pen­ing and I’m in heaven!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Фев 12 2015 в 3:51 PST

It feels good to be back 🙂

Фото опубликовано Lizzie Velasquez (@littlelizziev) Фев 11 2015 в 3:52 PST

We made it safe and sound! I’m about to burst with excite­ment to do my first speak­ing event of 2015 tomor­row!! #caper15

Фото опубликовано Lizzie Velasquez (@littlelizziev) Фев 10 2015 в 4:20 PST

First day of my sec­ond round of iron infu­sions today. Yes, I am going to be 26 next month and yes I brought my own blan­ket! #NotEn­gaged #IKnow­Some­oneWil­lAsk

Фото опубликовано Lizzie Velasquez (@littlelizziev) Фев 5 2015 в 8:50 PST

Shop­ping at the mall 3 days until Christ­mas and we are still man­ag­ing to laugh!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Дек 22 2014 в 5:42 PST

What I wake up to every morn­ing! BE BRAVE!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Дек 16 2014 в 8:19 PST

And the hos­pi­tal stay continues…

Фото опубликовано Lizzie Velasquez (@littlelizziev) Ноя 14 2014 в 6:45 PST

I’ve spent the last two days with peo­ple who mean the absolute world to me. I can’t seem to wipe the smile off my face and it’s all because of the peo­ple who have been brought into my life that have helped me become the bravest I’ve ever been. Here we go!! @thelizzieproject

Фото опубликовано Lizzie Velasquez (@littlelizziev) Окт 17 2014 в 8:51 PDT

Be STRONG when you are weak. BRAVE when you are scared. And HUMBLE when you are victorious.

Фото опубликовано Lizzie Velasquez (@littlelizziev) Сен 25 2014 в 9:52 PDT

What time is it? FAN MAIL TIME!!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Июл 2 2014 в 11:22 PDT

My lit­tle lady was right by my side while I was doing some final edits for book 3, Choos­ing Happiness!

Фото опубликовано Lizzie Velasquez (@littlelizziev) Май 21 2014 в 8:37 PDT

Смотрите также — 7 выдающихся историй инвалидов, живущих полной жизнью